AIDS Coalition to Unleash Power (ACT UP) is an international, grassroots political group working to end the AIDS pandemic. The group works to improve the lives of people with AIDS through direct action, medical research, treatment and advocacy, and working to change legislation and public policies.
ACT UP was formed on March 12, 1987, at the Lesbian and Gay Community Services Center in New York City. Co-founder Larry Kramer was asked to speak as part of a rotating speaker series, and his well-attended speech focused on action to fight AIDS. Kramer spoke out against the state of the Gay Men's Health Crisis (GMHC), which he perceived as politically impotent. Kramer had co-founded the GMHC but had resigned from its board of directors in 1983. According to Douglas Crimp, Kramer posed a question to the audience: "Do we want to start a new organization devoted to political action?" The answer was "a resounding yes." Approximately 300 people met two days later to form ACT UP. Inspired by this new approach to radical, direct action, other participants in these events returned home to multiple cities and formed local ACT UP chapters in Boston, Chicago, Los Angeles, Rhode Island, San Francisco, Washington, D.C., and other locations. and the online Capsule History of ACT UP, New York.
Wall Street
On March 24, 1987, 250 ACT UP members demonstrated at Wall Street and Broadway to demand greater access to experimental AIDS drugs and for a coordinated national policy to fight the disease. An op-ed article by Larry Kramer published in The New York Times the previous day described some of the issues ACT UP was concerned with. Seventeen ACT UP members were arrested during this civil disobedience.
On March 24, 1988, ACT UP returned to Wall Street for a larger demonstration in which over 100 people were arrested.
On September 14, 1989, seven ACT UP members infiltrated the New York Stock Exchange and chained themselves to the VIP balcony to protest the high price of the only approved AIDS drug, AZT. The group displayed a banner that read, "SELL WELLCOME" referring to the pharmaceutical sponsor of AZT, Burroughs Wellcome, which had set a price of approximately $10,000 per patient per year for the drug, well out of reach of nearly all HIV positive persons. Several days following this demonstration, Burroughs Wellcome lowered the price of AZT to $6,400 per patient per year.
General Post Office
ACT UP held their next action at the New York City General Post Office on the night of April 15, 1987, to an audience of people filing last minute tax returns. This event also marked the beginning of the conflation of ACT UP with the Silence=Death Project, which created a poster consisting of a right side up pink triangle (an upside-down pink triangle was used to mark gays in Nazi concentration camps) on a black background with the text "SILENCE = DEATH." Douglas Crimp said this demonstration showed the "media savvy" of ACT UP because the television media "routinely do stories about down-to-the-wire tax return filers." As such, ACT UP was virtually guaranteed media coverage. When he refused, in the words of Maria Maggenti, they decided that they "had to shut down Cosmo." According to those who were involved in organizing the action, it was significant in that it was the first time the women in ACT UP organized separately from the main body of the group. Additionally, filming the action itself, the preparation and the aftermath were all consciously planned and resulted in a video short directed by Jean Carlomusto and Maria Maggenti, titled, "Doctor, Liars, and Women: AIDS Activists Say No To Cosmo." The action consisted of approximately 150 activists protesting in front of the Hearst Building (parent company of Cosmopolitan) chanting "Say no to Cosmo!" and holding signs with slogans such as "Yes, the Cosmo Girl CAN get AIDS!"
Women and the CDC's AIDS definition
Following their participation in the Cosmopolitan protest, ACT UP's Women's Caucus targeted the Center for Disease Control for its narrow definition of what constituted HIV/AIDS. While causes of HIV transmission, like unprotected vaginal or anal sex, were similar among both men and women, the symptoms of the virus varied greatly. As historian Jennifer Brier noted, "for men, full-blown AIDS often caused Kaposi's sarcoma, while women experienced bacterial pneumonia, pelvic inflammatory disease, and cervical cancer." Since the CDC's definition did not account for such symptoms as a result of AIDS, American women in the 1980s were often diagnosed with AIDS Related Complex (or ARC) or HIV. "In this process," Brier explained, "these women effectively were denied the Social Security benefits that men with AIDS had fought hard to secure, and won, in the late 1980s."
In October 1990, attorney Theresa McGovern filed suit representing 19 New Yorkers who claimed they were unfairly denied disability benefits because of the CDC's narrow definition of AIDS. At an October 2, 1990, protest to raise attention for McGovern's lawsuit, two hundred ACT UP protesters gathered in Washington and chanted "How many more have to die before you say they qualify," and carried posters to the rally with the tagline "Women Don't Get AIDS/ They Just Die From It."
The CDC's initial reaction to calls of the revising the AIDS definition included setting the threshold of AIDS for both men and women at a T cell count of under 200. However, McGovern dismissed this suggestion. "Lots of women who show up at hospitals don't get T cells taken. No one knows they have HIV. I knew how many of our clients were dying of AIDS and not counted." Rather, McGovern, along with the ACLU and the New Jersey Women and AIDS Network, called for adding fifteen conditions to the list of the CDC's surveillance case definition, which was eventually adopted in January 1993. Six months later, the Clinton administration revised federal criteria for evaluating HIV status and making it easier for women with AIDS to secure Social Security benefits. The Women's Caucus's role in altering the CDC's definition helped to not only drastically increase availability of federal benefits to American women, but helped uncover a more accurate number of HIV/AIDS infected women in the United States; "under the new model, the number of women with AIDS in the United States increased almost 50 percent." The book was published in Spanish in 1993 titled La Mujer, el SIDA, y el Activismo. Members of the original Women and AIDS Handbook Group included Amy (Jamie) Bauer, Heidi Dorow, Ellen Neipris, Ann Northrop, Sydney Pokorney, Karen Ramspacher, Maxine Wolfe, and Brian Zabcik.
FDA
thumb|ACT UP demonstration at the FDA headquarters, 1988
On October 11, 1988, ACT UP had one of its most successful demonstrations (both in terms of size and national media coverage) when it successfully shut down the Food & Drug Administration (FDA) for a day. Media reported that it was the largest such demonstration since demonstrations against the Vietnam War.